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Notre petite fille est atteinte d'une maladie génétique rare, dite orpheline, la Trichothiodystrophie. Le but de ce site est de présenter cette maladie à ceux qui voudrait la connaître.
Our little daughter Andrea is suffering from a rare genetic disease, a disorder called Trichothiodystrophy. The goal of this website is to present it to anybody who would like to know about it.
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